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» Top ten signs of primary immune deficiency.
» Tips for Parents in hospitals.
» What we've learned about pain.
» Children responses to illness and hospitalization.

 
Diagnosis: Ectodermal Dysplasia with a Primary Immune Deficiency caused by a mutation on the fourth part of the NEMO gene.

Treatment: Stem cell transplant or Gene Therapy.

ANDY's showing an incredible strength and hope to stay alive.

Immune deficiency afflicts 1,000,000 Americans and 10 million world wide.(Source www.info4pi.org)

Primary Immunodeficiency, sometimes, do not have unique symptoms of their own. Rather, they appear as ordinary infections, often of the sinuses, ears, or lungs. They can also cause gastrointestinal problems or inflammation of the joints.

The infections can be chronic. This means they keep coming back, sometimes frequently, and can be severe.

Also, they tend to require prolonged recovery and may respond poorly to a conventional course of antibiotics.

PI can strike males and females of any ages, though it frequently presents itself early in life. The more severe forms of PI are detecter most frequently in childhood.

Early diagnosis and treatment of Primary Immunodeficiency is essential to prevent the recurring infections from doing permanent damage. Unfortunately, the lack of unique symptoms causes these diseases to resemble a great number of other illnesses. Thus, families and doctors are often unaware that the troubling conditions they are dealing with are actually rooted in a defect of the immune system.

Primary Immunodeficiency is very different from Acquired Immune Deficiency (AIDS) and they should not be confused with each other. Although both involve the immune system, Primary Immunodeficiency is genetic, or built into a person's body by their genes. AIDS, on the other hand, is acquired by becoming infected by the HIV virus.

 


 

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423 Brookline Ave. 149
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