BOSTON METRO
Boston's largest circulation dialy newspaper
Wednesday, Frebruary 12, 2003 . Volume 2 . issue 197 .
www.boston-metro.com
HELLO THERE
Andres Trevino
Parent
Your son was born with Primary Immune Deficiency. Could
you explain this illness?
P.I.D. is a disorder of the immune system that affects 10 million people
worldwide. It can be chronic and very severe and strikes males and females
of all ages, although it frequently presents itself early on in life. The
lack of unique symproms causes it to resemble many other illnesses. It is
often confused with AIDS, but P.I.D. is genetic. Andy has Ectodermal
dysplasia with immune deficiency, which causes repeated infections of his
gut, lungs, blood and skin, as well as refractory diarrhea.
What have you done to help him?
The most important thing is to be with Andy by his side,
always. His infections are constant. I decided to build a Web site in
November 2000, to inform the pubilc about his condition. The Web site has
successfully contributed to raising public awareness of the disease. Ir
raises funds for research and provides advice for parents with children in
the hospital. THe funds from the Web site go to the Department of Immunology
at Children's Hospital. We spent lots of time at the hospital battling
infections and we didn's have a diagnosis. So I published Andy's medical
records, and some doctors in Houston replied with a second opinion and
advice on possible treatment.
Did you have tech experience?
I knew how to use a computer. I purchased Microsoft Front
Page, off the shelf. It is so easy. I can build pages by Andy's crib at the
hospital.
How can people help?
Andy is currently waiting for a bone marrow transplant. To
help and learn more, go to the Web site
www.andy.org.mx, leave a commento for Andy, or purchase merchandise at
"The Store". Also you can call (617) 962 6016 or e-mail
andy@andy.org.mx
Marcy Raymond
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